Support – peer support & specialist nurse helpline, peer-support groups, educational events, information resources (written, online, videos, podcasts), dedicated psychotherapy & counselling service, online community forum and a travel welfare grant (available to support access to specialist diagnostics & treatment). Advocacy/Awareness - raising awareness activities, policy work, assessing and addressing unmet needs, HTA appraisals, PIP support, and signposting to aligned support services, e.g. benefits advice. Education – for patients, their family & friends and Healthcare Professionals. Research – annual research grant alongside undertaking patient experience and epidemiological studies.
Cancer type(s):
Neuroendocrine tumours
Support: Local Natter support groups across the UK : a hybrid of face-to-face and online meetings. Regional & National Natter groups : online. Natter Calendar https://www.neuroendocrinecancer.org.uk/events/ Education: Patient Education Events: https://www.neuroendocrinecancer.org.uk/supporting-you/patient-education-events/ HCP Education opportunities: RCN accredited Neuroendocrine Cancer Nurse Competency Framework, NCUK Academy for Nurses & AHPs, Co-production of RCGP Neuroendocrine Cancer modules. https://www.neuroendocrinecancer.org.uk/hcp/ Research & Publications: https://www.neuroendocrinecancer.org.uk/research/ Advocacy & Awareness: https://www.neuroendocrinecancer.org.uk/campaigns/ and https://incalliance.org/why-net-cancer-day/
We offer:
- Benefits Advice
- Bereavement support
- Cancer information materials
- Counselling
- Information
- Self Help & Support Groups
- Support from Health Professionals
- Telephone helpline
- User groups
- Volunteering activities
Catchment area:
UK Wide
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Opening times:
Office : Mon - Fri 9am - 5pm. Helpline Tues - Thurs 10am - 4 pm
Interested in joining us?
Just come along to our next meeting, or get in touch with us on the details below.
Find out more:
- Nikie Jervis on 01926 883487 Helpline 0800 434 6476
- hello@nc-uk.org
- www.neuroendocrinecancer.org.uk/